Speak out for change – share your experiences with those planning and delivering your services - ongoing survey
Are you living with or caring for someone with a neurological condition? If so, the Neurological Conditions Network would like to hear your experiences through the Speak out for change survey, currently available at www.speakoutforchange.net.
Describing the importance of this work, Michelle Tennyson, Assistant Director of Allied Health Professions and Personal and Public Involvement, Public Health Agency (PHA), and Chair of the Neurological Conditions Network, said: “The Neurological Conditions Network is carrying out this new survey to create an ongoing opportunity for people to share the emotional, physical and social aspects of daily life when living with and caring for someone with a neurological condition. I would urge people to participate and share their experiences as this information will help us better understand individual experiences and find out what would make lives better. This information will be used to inform the planning and delivery of services.”
Anyone affected by a neurological condition, from any area across Northern Ireland, is urged to take part.
The Northern Ireland Neurological Charities Alliance, added, “It’s really important that people with a neurological condition and their families use this opportunity to tell their experiences, so we encourage everyone to participate.”
This is an ongoing survey, you can complete the online survey or request a copy at www.speakoutforchange.net from 28 March onwards. Copies should be returned to Julie Mawhinney, Public Health Agency, 12-22 Linenhall Street, Belfast, BT2 8BS. Tel: 028 90321313 ext: 2498, email neurological.conditions@hscni.net
Contact the PHA Press Office on 028 9031 1611.
• This is an ongoing exercise, the first stage of which will focus primarily on collecting the experiences of those living with and caring for people with neurological conditions.
• This process will allow the PHA, Health and Social Care Board (HSCB) and Neurological Conditions Network to pilot new methods of engagement, finding out what works best. As a result, new channels of communication, which enable service users to be active partners in planning for future services, will be put in place.
• The Neurological Conditions Network is made up of representatives from: PHA (Chair); HSCB; DHSSPS; Carers NI; Patient and Client Council; Northern Ireland Neurological Conditions Alliance; Long Term Conditions Alliance Northern Ireland; and the Belfast, Southern, Northern, Western and South Eastern Health and Social Care Trusts (HSCTs).