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Autism

The 10,000 Voices initiative is designed to capture the lived experience of people who use services and affords them an opportunity to tell their story in a way that enables services to change and improve.

The survey was undertaken in partnership with the PHA and this report represents the first time the 10,000 Voices initiative has surveyed any aspect of children’s services.

This is the summary report of the Speak out for Change engagement exercise carried out by the Neurological Conditions Network. This engagement undertook to ask people’s experiences of living with a neurological condition and caring for someone with a neurological condition. Across the wide range of conditions represented,  the 142 patient experiences gathered to date, have consistently revealed issues around information, choice and control, independence and the emotional impact of neurological conditions.